128 Lecky Road
The Just Keep Swimming Yaya Charity was set up in March 2018 in memory of Alexandra Johnston. Alexandra (Yaya) was diagnosed with Ewings Sarcoma in August 2013 where she was given just three months to live. Her spirit, courage and determination along with the treatment plan by her doctors kept her alive until January 18. She lived life to the full and during her battle supported so many other children through their cancer journey regardless of the outcome. She carried both her physical and mental pain in what can only be described as that of a warrior. During her final weeks she requested that a charity be set up in her name to support fathers and families affected by cancer, ensuring that her family would continue to offer support to others in her absence.
They are registered with the NI Charities Commission and are on the deemed list waiting on registration. They are also registered as a limited company (NI 657729) from December 2018 and their main objective is to; “support fathers and families whose children either live with, survive or die from cancer or a cancer related illness without distinction of sex, sexual orientation, age, race, ethnicity, disability or political or religious opinions by:-
1. financially supporting the family during the initial period of a cancer diagnosis
2. develop a range of programmes and activities to mentor, support, guide and provide employment opportunities for young people battling all forms of cancer
3. provide awareness of Ewings Sarcoma, and /or other identified cancers.
4. provide support programmes, activities and signposting for fathers, mothers and siblings
5. promoting social enterprise and such other charitable purposes as may from time to time be determined;
6. promoting co-operation and partnership working between charities, community and voluntary groups, public and statutory agencies and bodies and private sector organisations to help achieve these Objects.
In October 2018 they opened a coffee shop as a not-for-profit social enterprise, providing a comfortable space with top notch local food and drink for people to meet family, friends and neighbours and access support programmes, cancer awareness activities and signposting as and when needed.